Tag Archive | lupus

Doctors:

Why do we put our lives into a strangers hands?  You wouldn’t you say?  You do, each time you go to your doctor.  We rely on these men and women to take care of us.  To keep us healthy.  To cure us of disease. 

We don’t KNOW these doctors.  We don’t know what their childhood was like.  We don’t know what their marriages are like.  We don’t know what kind of grades they got in medical school…were they in the top half or the bottom half?  Most of the time we don’t know if they have been involved in a malpractice lawsuit…oh, you can try to check on healthgrades or some similar site., but it isn’t always noted…if they settled out of court for instance. it won’t sometimes even be on their record.

Do they CARE about their patients?  Or are they just putting in the time until they can retire to full time on the golf course?  Are they alcoholics or drug abusers?  You can’t always tell….and you would be suprised at the numbers.  Do they even READ your medical history?  I know for a fact that some don’t.  Some never even look at your chart….this is why you find yourself repeating your health concerns repeatedly.  Do they UNDERSTAND your illness?  If it’s a broken bone…they sure do!  Heart condition?  Usually.  But if it’s a more complicated illness, like auto immune diseases (Lupus, APS) or a chronic pain condition (Fibro, CFS) they aren’t so good…cuz that would require them to do extra research…once they graduate med school they don’t feel the need to do a whole lot of that…oh, they must take classes/seminars…but they aren’t often worried about such things.

When I was in the hospital,. there was an instance where the physician that was in charge of my case because my normal doc was busy in Disney World, where he literally NEVER entered my room.  Never touched me or looked at me.  He stood at the nurses station and wrote in my chart…but he never came into my room…while I was on a vent in a coma and my intestines were outside my body.  That man was in charge of my life.

To alot of doctors we are charts.  They dont know us as people.  They don’t CARE about us as people.  We are a means to an end.  They are more concerned about their big houses and fancy cars.  Their boats.  Their vacations. Their country clubs.  In some cases…their NURSES and mistresses. But in alot of cases. WE are just a number.  Some are just going thru the motions.

I love on tv when they show doctors who actually KNOW their patients…like they are friends!  They know all their health history and their lifestyles…that would be awesome!  Then you could feel like that doc was giving you good medical care…like they knew you and cared about you!

With my very complicated medical history I live in FEAR of anything new happening to me.  If I passed out right now…and was sent to the hospital…they could really screw me up…because I am on soo many medications…because my abdomen is very delicate…if they cut into me without knowing what they were doing, they will most certainly kill me (my intestines are all glued together and glued to my organs and very close to the skin…no muscle wall protecting them).  I can not say with any assurance that my family doctor would even think of that.  I’m on blood thinners, of course that is on my chart…but it was on my chart in the hospital and mistakes were made.

There are soooo many medical mistakes made and sooo many ways to cover them up.  So many that are not reported and some that are reported but not fully disclosed.  We as healthcare consumers are on our own.  WE have to be responsible for our own healthcare needs.  We have to investigate our doctors. but even then we cannot rely on the info we find.  We have to choose our docs with our gut along with what we find out about their education.  We have to keep our own set of medical records up to date.  We have to KNOW our medications well and know the side effects and what interractions with other meds or foods there are.  We must ask questions.  We must research our illnesses…our symptoms. We have to educate ourselves.

The day of going to the town doc and just leaving everything up to him is over.  I hate going to doctors…for good reason I would say.  But I DO have to go to them.  New ones at times.  And it sucks.  I HATE it.  Just like this new urologist I am seeing.  He has me cathing for what he says is urinary retention.  I believe there is more going on than just that.  But, I’m doing what he has prescribed for now…waiting for that return appointment where I can ask for further tests to be done….because although i do have retained uring…it’s not much, and my symptoms have not gone away since cathing.

It’s scary to be a person who has several illnesses to deal with.  Let me see…what all do I have…1) Antiphosphosipid Syndrome (potentially fatal blood clotting autoimmune disease) 2) Lupus 3) Adhesions/Neuromas/Scar tissue/Hernias (due to botched abdominal surgery-also potentially fatal due to bowel blockage/strangulation) 4) Degenerative Disk Disease and ruptured disks in back 5) Osteoarthritis of back, hip and knees 6) Mitral Valve Prolapse 7) Ruptured tendons in elbows 8) Fibromyalgia 9) neurogenic bladder 10) Really bad teeth…lol.

Current symptoms I can’t figure out…but are not medication related….are, extreme nausea and fatigue…more than the norm, and flank type pain and my eyes ache and are very tired and the whites are bloodshot and greyish looking. I’m afraid it’s liver related…or kidney possibly.

I dunno.  But I just feel like doctors find me confusing.  Like I’m just too complicated…maybe they don’t know where to begin…or are afraid to do anything…lol. Don’t get me wrong.  I respect the doctors that are really trying to do good.  The ones who treat us like people…not cattle.  I respect how hard they’ve worked for their license.  I just get tired of seeing the ones who just run you thru like a car wash.

I’ve done some research on Medical Malpractice…and it’s just astonishing what’s going on out there.  It’s downright horrifying. But we NEED doctors.  We have to go to them.  We have to depend on them.  We have to trust them.  But you better do your part.  And even if you do…add alot of prayer and faith in God to get you through.

To all the doctors out there who actually CARE about your patients…God bless you.  To the one’s in it for the money and prestige…God help you.  To the dumbass who butchered me….I hope you think about it each and every day.

So…this was my 50th blog!!!  Woo Hoo!  50!  The bigh 5-0!  😉

Thanks to everyone who takes the time out of their busy day to read my little blog with all my crazy ramblings!  I appreciate it!  I love the messages and support from you all!

“Live, Love, Laugh!”

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